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RESOURCES

Resources

Veronica Shanklin, cast member and founder of Dementia Care Warriors.

CAREGIVER RESOURCES (scroll down for PLWD Resources)

 

COMMUNITIES:

 

Support organizations for family care partners/givers and people living with dementia.

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  • African American Health Program Alzheimer's Awareness Tool Kit includes resources and information for people living with dementia and caregivers, with emphasis on African American Alzheimer's statistics and support. Download the AAHP Alzheimer's Awareness Took Kit here.

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  • HOPE Dementia Support providing a wealth of support programs for caregivers in Oregon and SW Washington.​

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  • Innerhive created the caregiver's best friend: a free app to help quickly access your support network with updates, health information, care needs and gaps, wellness tools, and more.

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  • Dementia Alliance International focuses on folks living with dementia providing online support groups that serve Australia, various countries in Europe and North America - your care partner could benefit greatly from the understanding and support of others walking their same path!

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  • Dementia Care Warriors based in the Dallas/Ft. Worth area, Dementia Care Warriors provides community, connection, and support. Offers Caregiver Respite Scholarships and the annual Revive Refresh Caregiver Symposium.

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  • Eldercare Locator, a support database run by the United States Administration on Aging, providing a search feature for a wide range of resources available in your area including support.​

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  • Frankie Mae Foundation passionately supports caregivers in the Charlotte, NC area through weekly and monthly meet-ups, support groups, transportation and a wealth of respite services.

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  • FTD Disorders Registry information and resources for those living with FTD and those caring for them in addition to an online database collecting info from those affected by FTD.  

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  • Happy Healthy Caregiver provides education, support, resources, and community to help family caregivers infuse self-care while juggling life’s demands.  

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  • Hilarity for Charity offers ongoing online support specific to various caregiver groupings such as Adult Children Caregivers for parents, Spanish-speaking caregivers, and BIPOC and LGBTQIA+ caregivers.

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  • Leeza's Care Connection offers monthly online support groups like The Sister Circle for black women to support, share, reflect and express themselves in their caregiver journey, and the Courageous Heroes Support Group specifically for spouses that are caring for their husband or wife living with dementia.

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  • Lorenzo's House, bringing light to families living with young-onset dementias nationally and globally, with virtual and in-person support for people living with young-onset, and the spouses and children that support them.

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  • Memory Cafe Directory offers both in-person and virtual get-togethers for care partners and their loved one to participate in, throughout Armenia, Australia, Brazil, Canada, and the USA.

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  • Remember Me Podcast + Community provides resources, connections, and understanding for families, caregivers, and people affected by frontotemporal dementia. f

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  • SilverSource, Inc. offers a slew of caregiver support and safety net services in the Stamford, CT area for seniors and other community members facing difficult times.

Forums

ALZHEIMER'S & OTHER DEMENTIAS NATIONAL ORGANIZATIONS

 

Many national organizations offer 24/7 hotlines for care partners/givers, resources, and caregiver training courses. 

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ARTS

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  • Bridgetown Music Therapy sparking joy and connection through dementia-friendly music.

  • ​Dementia Choirs for people living with dementia whether they're a great singer or not! If your state is not listed here, check with your local Alzheimer's Association to see if there is one in your area.

  • In the UK Our Dementia Choir is a BBC-made- famous program, with additional dementia choirs catching on all over the world.

  • Harmony in Dementia provides virtual and in-person sessions to create meaningfully supported musical connections one note at a time

  • Memories in the Making art program for people living with dementia is offered by various Alzheimer's Association chapters and additional community organizations. 

  • Opening Minds through Art builds bridges across age and cognitive barriers through art. Our mom LOVED this program!

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BENEFITS ELIGIBILITY

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BLOG

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BOOKS

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CHILDREN/YOUNG ADULT BOOKS/VIDEOS

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LEGAL

  • ElderLawAnswers - Free elder law guides on topics ranging from Basic Rules of Medicaid Eligibility to The Probate Process

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MAGAZINES

  • Mirador Magazine - An amazing award-winning, dementia-inclusive publication. ​

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PODCASTS

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RESEARCH

  • Aging Research Navigators, USA - Connects caregivers and people living with dementia to research study opportunities within the U.S. 

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  • Alzheimer.gov, USA - Use your zip code, city, or state to find clinical trials for both caregivers and people living with dementia in your area. 

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TELEVISION

  • Zinnia TV - Engaging programming that improves the quality of life for people living with dementia and their caregivers.

 

TRAINING

From online guides to printed materials, YouTube videos to virtual and in-person dementia family caregiver training - there are a lot of options both free and paid.

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  • BeLightCare Consulting offers one-on-one caregiver consultations, educational trainings and workshops and speech-language pathologist consultations.

 

  • Idaho Commission on Aging Stay Educated offers free online caregiver training - - check with your state's agency or department on aging to find family caregiver education resources in your state.

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  • Dementia 360, in person centered dementia education and consulting for both family caregivers, caregiver professionals, health care organizations and workers, and businesses.

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  • Oregon Care Partners offers free online and in-person training for dementia family caregivers - check with your state's agency or department on aging to find family caregiver education resources in your state.

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  • The DAWN Method is another highly lauded dementia family caregiver training program.

GIFTS TO SHOW FAMILY CAREGIVERS THAT YOU CELEBRATE THEM

Brighten a family caregivers day with a caregiver centered gift or, even better, the gift of your time. 

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  • Relish creates activity products for all stages of dementia. Know a caregiver who's struggling to connect with their dementia person? An activity gift may be just the thing!​

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Lindsay and Matt Perrin greet Kitty

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  • Wine, Women, & Dementia Shop! - DVD & BluRays with the full theatrical release of the film, the PBS exclusive one-hour version of the film, English and Spanish captions for both, plus Bonus Features with deleted scenes. WWD t-shirts, hoodies, coffee mugs, stickers, tea towels with humorous quotes from the film and an awesome I Care Gift Box for those you dig the most.

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  • Offer to do research for dementia friendly activities and respite options in their area (day programs, dementia choirs, dementia art classes). Present them with the list of opportunities and offer to go along the first time! It can be hard for a caregiver to leave their dementia person in an unfamiliar setting initially - having a friend to ease the trepidation is a great gift of time.

 

  • Offer to make lunch or dinner for the family caregiver and their dementia person. Having someone else around to break up their "alone-together" time is a great boost to a long day.

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  • Run errands for a family caregiver, or better yet, hang out with their dementia person while they run errands and get a little away-time to themselves.

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  • Offer to help with home tasks that they are too overwhelmed to get to like cleaning up a flower bed or taking their vehicle for a car wash and interior cleaning.

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Left to Right: Vesna Okaikoi, Peter Alexander, Emily Ong, and Michael Booth, all advocates living with dementia.

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PEOPLE LIVING WITH DEMENTIA - Resources for PLWDs and Caregivers alike.

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The least tapped resource in dementia? People living with dementia!  Here's some places to get started exploring the information and resources other PLWDs can bring into your journey:

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â­‘ Dementia Alliance International's curated list of books by people with dementia.

â­‘ Dementia Diaries gives voice to people with dementia through audio and video 

    diaries.

â­‘ Singapore's DementiaHub spotlights PLWD advocates in articles, the online e-

    book Living with Dementia - Voices of Asia, and Voices for Hope self-advocacy

    program that equips participants with skills and confidence to publicly share

    their stories.

â­‘ Ken Clasper started his blog Living Well with Lewy Body Dementia and

     Comorbidities in 2012 and he hasn't stopped writing since!

â­‘ From Australia, Hold The Moment is a podcast by people living with dementia.

    It's fascinating.

â­‘ Dementia Mentors is exclusively for PLWDs - all of their mentors are also living

    with a dementia diagnosis. They host Virtual Memory Cafes every week to vent,

    laugh, support and keep those social chops honed.

â­‘ Check out the Facebook group Memory People for PLWDs to support one

    another. Or Instagram's Dangle&Dot (@dangle.dot), an energetic dementia duo:

    Dangle is living with dementia and Dot is her care partner.

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