RESOURCES
Veronica Shanklin, cast member and founder of Dementia Care Warriors.
CAREGIVER COMMUNITIES:
Support organizations for family care partners/givers and people living with dementia.
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Advocate for Mom & Dad offers caregiver consulting and resources as well as helpful articles.
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African American Health Program Alzheimer's Awareness Tool Kit includes resources and information for people living with dementia and caregivers, with emphasis on African American Alzheimer's statistics and support. Download the AAHP Alzheimer's Awareness Took Kit here.
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Alzheimer's Association Search page for virtual and in-person support groups in your area.
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Caregiver Resource Center for in-person support in the Greater Dubuque, Iowa area, and virtual support from anywhere.
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HOPE Dementia Support providing a wealth of support programs for caregivers in Oregon and SW Washington.​
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Daughterhood Circles support groups are available throughout the USA and Canada. If there isn't one in your area you can launch your own!
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Dementia Alliance International focuses on folks living with dementia providing online support groups that serve Australia, various countries in Europe and North America - your care partner could benefit greatly from the understanding and support of others walking their same path!
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Dementia Map Global Resource Directory, comprehensive listing of dementia support groups and a myriad of additional resources by type, city, state, country
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Eldercare Locator, a support database run by the United States Administration on Aging, providing a search feature for a wide range of resources available in your area including support.​
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Frankie Mae Foundation passionately supports caregivers in the Charlotte, NC area through weekly and monthly meet-ups, support groups, transportation and a wealth of respite services.
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Idaho Commission on Aging, provides support group listings and many more caregiver resources
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Lorenzo's House, bringing light to families living with young-onset dementias nationally and globally, with virtual and in-person support for people living with young-onset, and the spouses and children that support them.
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Memory Cafe Directory offers both in-person and virtual get-togethers for care partners and their loved one to participate in, throughout Armenia, Australia, Brazil, Canada, and the USA.
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SilverSource, Inc. offers a slew of caregiver support and safety net services in the Stamford, CT area for seniors and other community members facing difficult times.
Facebook Communities
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Instagram Communities
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TikTok Communities
Forums
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Alzconnected Forum
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Dementia Talking Point, Alzheimer's Society, UK, Forum
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Caregiving.com Forum
ALZHEIMER'S & OTHER DEMENTIAS NATIONAL ORGANIZATIONS
Many national organizations offer 24/7 hotlines for care partners/givers, resources, and caregiver training courses.
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Alzheimer's Association, Global Chapters
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Caregiving.com, USA
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Dementia Friends, UK & Dementia Friends, USA
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ARTS
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​Dementia Choirs for people living with dementia whether they're a great singer or not! If your state is not listed here, check with your local Alzheimer's Association to see if there is one in your area.
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In the UK Our Dementia Choir is a BBC-made- famous program, with additional dementia choirs catching on all over the world.
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Harmony in Dementia provides virtual and in-person sessions to create meaningfully supported musical connections one note at a time
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Memories in the Making art program for people living with dementia is offered by various Alzheimer's Association chapters and additional community organizations.
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Opening Minds through Art builds bridges across age and cognitive barriers through art. Our mom LOVED this program!
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BENEFITS ELIGIBILITY
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BenefitsCheckUp from the National Council on Aging is a quick, online questionnaire to help find benefits that can assist financially with food, medicine, and more.
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BLOG
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DementiaWho! an excellent caregiver blog from across the pond.
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Stumped Town Dementia (unabashed self-promotion)
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BOOKS
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AlzAuthors with a wide selection of guides, fiction, memoirs
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Diagnosis Dementia by Nicole J. Smith, is your guide for eldercare planning and crisis management.
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How to Survive 911 Medical Emergencies, Before, During, After, by Nancy May and Robert Antonion. Tips to calmly manage any 911 crisis.
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Somebody I Used to Know: A Memoir, by Wendy Mitchell. Her journey living with young onset Alzheimer's
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The 36-Hour Day: A Family Guide to Caring for People Who Have Alzheimer Disease, Other Dementias, and Memory Loss, by Nancy L. Mace, MA and Peter V Rabins, MD, MPH
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CHILDREN/YOUNG ADULT BOOKS/VIDEOS
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Betty the Bald Chicken - Lessons in How to Care
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Mackensie Meets Alzheimer's Education Program, music and video based program to help children and families cope with a loved one who has dementia.
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LEGAL
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ElderLawAnswers - Free elder law guides on topics ranging from Basic Rules of Medicaid Eligibility to The Probate Process
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PODCASTS
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RESEARCH
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Aging Research Navigators, USA - Connects caregivers and people living with dementia to research study opportunities within the U.S.
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Alzheimer.gov, USA - Use your zip code, city, or state to find clinical trials for both caregivers and people living with dementia in your area.
TRAINING
From online guides to printed materials, YouTube videos to virtual and in-person dementia family caregiver training - there are a lot of options both free and paid.
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Alzheimer's Speaks has a plethora of free educational resources.
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Idaho Commission on Aging Stay Educated offers free online caregiver training - - check with your state's agency or department on aging to find family caregiver education resources in your state.
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Dementia 360, in person centered dementia education and consulting for both family caregivers, caregiver professionals, health care organizations and workers, and businesses.
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Oregon Care Partners offers free online and in-person training for dementia family caregivers - check with your state's agency or department on aging to find family caregiver education resources in your state.
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There is no bigger rockstar in a dementia family caregiver's journey than Teepa Snow and her Positive Approach to Care. Start with her videos on YouTube and then thank the powers that be that she exists.
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The DAWN Method is another highly lauded dementia family caregiver training program.
GIFTS TO SHOW FAMILY CAREGIVERS THAT YOU CELEBRATE THEM
Brighten a family caregivers day with a caregiver centered gift or, even better, the gift of your time.
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Relish creates activity products for all stages of dementia. Know a caregiver who's struggling to connect with their dementia person? An activity gift may be just the thing!​
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Lindsay and Matt Perrin greet Kitty
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Spoonful of Comfort - baskets of yummy comfort for all types of family caregivers.
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Offer to do research for dementia friendly activities and respite options in their area (day programs, dementia choirs, dementia art classes). Present them with the list of opportunities and offer to go along the first time! It can be hard for a caregiver to leave their dementia person in an unfamiliar setting initially - having a friend to ease the trepidation is a great gift of time.
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Offer to make lunch or dinner for the family caregiver and their dementia person. Having someone else around to break up their "alone-together" time is a great boost to a long day.
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Run errands for a family caregiver, or better yet, hang out with their dementia person while they run errands and get a little away-time to themselves.
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Offer to help with home tasks that they are too overwhelmed to get to like cleaning up a flower bed or taking their vehicle for a car wash and interior cleaning.